Sunday, April 26, 2015




February 16, 2015 - April 26, 2015. We're finally home. After one more year of bowel rest, clear liquids, and woundcare at home, doctors will try again. 

"So we’re not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without his unfolding grace..." 2 Corinthians 4:16
 

Monday, April 20, 2015

Fight Song

Like a small boat
In the ocean
Sending BIG waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
but I can make an explosion

And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time

This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
Cause I’ve still got a lot of fight left in me

Losing friends and I’m chasing sleep
Everybody’s worried about me
In too deep
Say I’m in too deep
And it’s been two years
I miss my home
But there’s a fire burning in my bones
And I still believe
Yeah I still believe

And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time

This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
Cause I’ve still got a lot of fight left in me

Now I’ve still got a lot of fight left in me

4.29.14

(Rachel Platten - Fight Song)

Wednesday, April 15, 2015

My heart breaks every time he is taken down to the OR and sent back to me in excruciating, indescribable pain. We will never get used to it. Ask God - on Chris' behalf - to take this pain away. 


Monday, April 13, 2015


"There is a light at the end of the tunnel. It may only be a matchstick, but it is flickering and waiting for you. The tunnel is long and dark. You will encounter stop signs, going in reverse, unexpected detours and potholes so deep it seems impossible to climb out of. But, you will get there...you will get your life back." 

People often say to me, "how do you do it?" I say, "I'm not alone".

Thankful for the letters of support from so many who have gone before. Your stories are precious to God, and inspirational to me. - JL

Friday, April 10, 2015

I refuse to let Spring pass by again without Christopher seeing a single flower from our first home. If I can't bring Chris home yet, I'll bring the beauty of Spring to him at the hospital.